tag:blogger.com,1999:blog-1457833116563861494.post3655530338162953125..comments2023-12-20T08:31:42.572-06:00Comments on How I complicated my life today: What's on my fast rackGraciehttp://www.blogger.com/profile/05641028266038110278noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1457833116563861494.post-68396554732786513422014-02-07T07:56:05.864-06:002014-02-07T07:56:05.864-06:00Our youngest son has a rare form of epilepsy, whic...Our youngest son has a rare form of epilepsy, which is extremely difficult to treat. After trying multiple different seizure meds, we fought to get him ACTH - an injected steroid that has had really good results. ACTH is only used for a 6-12 weeks course, BUT, it is $30,000 a VIAL. How crazy is that??? There was lots of drama about the company buying the right, raising the cost, etc. etc. and as we were fighting with insurance, etc. I was holding my baby who was literally having 100+ seizures a day. We ended up getting three vials - $90,000 worth, and after two injections he was seizure free (and has been so for over four years now). So we were incredibly grateful for the drug, but sickened by the drug company.SupermomE13https://www.blogger.com/profile/11305105357197956694noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-26410896441238821052014-02-06T19:02:04.405-06:002014-02-06T19:02:04.405-06:00That's an interesting drug cocktail... Toto, w...That's an interesting drug cocktail... Toto, we're not in your average drugstore any more! Sounds like a specialty pharmacy! <br />I'm also curious about how people pay for these drugs; Singapore has a thicket of somewhat incomprehensible drug subsidies based on what is commonly used, the patient's income status, et.c. Gracehttps://www.blogger.com/profile/08281336239355942919noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-88740351256283248132014-02-06T18:55:43.839-06:002014-02-06T18:55:43.839-06:00We don't actually know very much about Hep C t...We don't actually know very much about Hep C transmission. We know that blood transmits the virus, but we don't know if it's transmittable sexually. And the virus is very fit - meaning, it can remain viable outside of a host cell for a long time. So a hep C virus can sit on a surface like a doorknob for hours, days, weeks, maybe months, and be picked up by contact with an open wound. As to Hep C rates - this is getting long and it/s a lot of info. Email me if you want more info - I have multiple theories.Graciehttps://www.blogger.com/profile/05641028266038110278noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-46823258499706167292014-02-06T17:46:32.687-06:002014-02-06T17:46:32.687-06:00Oh wow! That's just so expensive. How do peopl...Oh wow! That's just so expensive. How do people afford that?<br /><br />In Australia we have the PBS (pharmaceutical benefit scheme) which is where the government subsidises commonly used drugs and that makes drugs a lot more affordable for most people.Charhttps://www.blogger.com/profile/13819714901550763235noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-41204853694139929072014-02-06T17:15:13.597-06:002014-02-06T17:15:13.597-06:00We have a family situation that has forced us to l...We have a family situation that has forced us to learn more about Hep C and Baby Boomers. What's your opinion on wh there are a growing number from this age group contracting it ... drug use in the 60's? We looked into it quite a bit and can't get a solid answer.Jim ... 50after40https://www.blogger.com/profile/14165153305680378261noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-46070523970766233062014-02-06T13:22:15.196-06:002014-02-06T13:22:15.196-06:00That's an interesting perspective. I hadn'...That's an interesting perspective. I hadn't considered the cost of development, but it is certainly there. The one we will need again soon is prednisone for poison oak, most likely.Rainahttps://www.blogger.com/profile/14118022681297462844noreply@blogger.comtag:blogger.com,1999:blog-1457833116563861494.post-34902418137936461792014-02-06T11:18:44.044-06:002014-02-06T11:18:44.044-06:00Wow. Wow.
That's the thing, though. Who can ...Wow. Wow.<br /><br />That's the thing, though. Who can put a price on NOT being sick?Kate Geisenhttps://www.blogger.com/profile/11854561265520868538noreply@blogger.com